Monday, October 13, 2008

Why I'm here...

I often find myself reading other blogs, websites, books, magazines. etc...comparing notes with other moms. How do they do it? Why do they do it? What happens if? So many notes to compare, so many different situations.
I want to share my stories, my adventures, my moments of madness and insanity, my joys and my worries. And I want to hear what other mommies out there are doing in similar situations!
As my kids get older, I worry more and more. I worry about what they learn at school, not just from their teachers but from their peers. I worry about what they learn from the media. I worry about what they learn from my actions and reactions. I think of my own childhood and try to learn my lessons from that.
My story: I married my high school sweetheart 8 years ago. We have 3 children. Marcelina, my 6 year old fancy girly-girl; Alex, my 4 year old sweet, lovable monster; and Angelina my 19 month old power-puff girl, who has gone through 2 open heart surgeries.
My children make me a better person. For them I strive to be the best mom I can be.

4 comments:

Kathy said...

Does Alex know that you put that picture of him on top! Too funny!
I'll check on you everyday!

Oh..and that's so funny that Isaac and Angelina look alike. Have you seen a younger pic of Arianna...they look alike too. It's the whole face...the eyes, little nose, mouth, jawline...isn't that funny! I read somewhere that it's the "cute baby" syndrome.
But...I haven't seen many pics of adults...are they still cute??

I'm sure they are!
I look forward to you sharing your wisdom with the rest of us!!!

What have your kids decided to be for Halloween??

talk to you later,
kathy

Unknown said...

I like the way Kathy put it.."Cute Baby" Syndrome. :)

I'll be following both your blogs from now on.

Love,

Vanessa

Rachel Dominguez said...

I am so glad to see that you have started a blog for yourself! Sometimes it's good to vent and express YOUR feelings. As a single mother of four and some sick at times, I know how you feel. I will be keeping up with you and baby girls blog as well...

Rachel

grammie said...

Our story is quite the "lifetime "movie...
Please visit us at elijahslegacy.blogspot.com/
I don't know where to start or to stop. 24 yrs. ago, my life was changed forever. I became the mommy of a very special little girl. She was born w/asd/vsd. As a single , young mommy I was devastated by the news. Her heart was repaired @ 3 mos. old but as she SLOWLY grew it was obv. something else was wrong. Her speech sounds as if she's deaf, although she's not, she had learning difficulties and has always been small. I met and married her daddy when she was 3, we had 2 more children who are perfectly healthy. That alone, is a daily struggle for her. She has never understood why she had to be 'different'-her words-not ours.
She grad. in 03' and married her h.s. sweetie in 04'. They were blessed with a son on 10-18-07. With the joy of his birth came the agonizing diagnosis of pulmonary atresia. NO PULMONARY ARTERY. He would have to have surgeries for the rest of his life to correct and maintain his heart. He spent his 1st 45 days in nicu. Shortly after coming home, we learned he also had a severe case of DGS.Which led to us finding out that VCFS is what our little girl had been living with all along. It gave us coveted answers, but also sent us into a whilwind of confusion. To our dismay, none of the DR.s in Miss. were familiar with this syndrome , but one, the endocrinologist. He was fabulous, but it's not alot when we had to go to Boston to begin to get answers. Even then most the answers were from OUR research on the intrnet.
He had surgeries,lived on o2 fought the devil-and began to get better. On his fist B-DAY he weighed just over 9# and was doing great.
Nov. 26,08' he had an ear infection , but was up to 10.3oz. He was swollen, and seemed to us to be in distress, but the DR. said he was fine. He was not fine. On 11-29-08 we lost our ANGEL to edema that shut down his heart.
The e.r doc said if he had gotten the CATH he needed a week earlier he would still be here. The CATH was sced. for 12-4-08. Too late.
We are all devastated still. My precious daughter who has struggled her whole life has lost her greatest accomplishment due to medical ignorance.
Please visit us at elijahslegacy.blogspot.com/
We are trying to help get info. out about 22q. Maybe we can help someone else to not have to struggle for every scrap of info. so their children can have the best care.
May GOD bless you